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MND Project

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background | project worker |
mnd & palliative care | funding | program of experience | resources | research | training |

MND Project Information

This page is currently under construction

Background

In 2007 the Department of Human Services, in conjunction with Motor Neurone Disease Victoria (MNDV), commissioned a project to assist people with Motor Neurone Disease (MND) to receive access to palliative care services and to assist palliative care services to manage and support people living with MND.

The report found that palliative care workers did not feel confident in their level of knowledge with respect to MND and that people with MND did not fully understand the services available through palliative care. When people with MND were in in-patient units, due to their complex care needs, staff were affected by reduced staff time and resources for patient care. Following this report, shared care worker positions were implemented across Victoria to be located in palliative care agencies to promote early referral, support, development and delivery of education. Some additional funding sources for inpatient and community palliative care services were also established.

MND is a life-threatening illness. People with MND, their families and carers, need access to a broad range of services that assist with the physical, psychological, emotional and spiritual impacts of the disease. Palliative care can provide many of these elements.

Project Worker

Robyn Reid was trained as a Registered Nurse and is now a Social Worker. She has had extensive experience over thirty years in health, welfare and education sectors in a variety of roles. She can be contacted at robyn.reid@sepc.org.au . If you would like to discuss the training needs of your staff with respect to palliative care, MND and its management please donít hesitate to contact her as training can be tailored to your needs.

MND and palliative care

For more information on Motor Neurone Disease please ..........

Funding

There are two initiatives for people with MND who are in a palliative care service. One is provision of extra funding when they are in an inpatient palliative care unit and the other is to provide funding to assist the person with MND to enhance their quality of life when they are in community palliative care. Information about this funding can be accessed and applied for via the website at Motor Neurone Disease Association.

For any assistance in the Sourthern Metropolitan Region please contact Robyn Reid

Program of Experience in Motor Neurone Disease

One of the initiatives in the Southern Region by the MND SCW in conjunction with MNDV and Bethlehem Calvary Health Care is the introduction of a PEPA-like program which enables health professionals to spend time in these agencies with their colleagues. They identify their learning needs and participate in activities which improve their understanding of best practice with regard to MND. This skill development and knowledge is then taken back into their palliative care agency and used to support, resource and educate their colleagues and provide optimal care to people with MND their families and carers. Those who participate must be working in the palliative care sector and care for people with MND. The program will run in 2013 and the details will be posted on this website.

Resources

Research

Training

Training can be developed according to your specific needs in relation to MND and palliative care. Some examples include:

  • What is MND?
  • Fronto-temporal dementia in MND
  • Non invasive ventilation management and care
  • Sexuality and palliative care
  • Conversations about palliative care-assisting appropriate referrals
  • Loss and grief